A while ago, I met the incredible Sally for the first time; mum, wife and co-founder of Blue Skye Thinking (along with husband Andrew). Sally and I had conversed via email for a while, prior to meeting and without pouring out all the clichés, I have always been struck by how honest and rational she is, both in emails and in the Hall family blog, which you can read here. What Sally and I discussed remains between the four walls of her living room (slight house envy!) but something which is very apparent was how important it is for Sally to help other children and their families who are facing the same or similar to what Skye and his family faced. In various parts of the living room where children’s toys and dressing up clothes, ready to be delivered to children’s ward across the country. The toys and clothes have now been delivered and Sally’s living room now resembles a loom factory, as they begin to measure the length of all the loom bands sent to them, to hopefully loom to the moon. Clothes and toys won’t cure cancer, but they will provide a sense of normality to the otherwise scary hospital routine, and ultimately give children a sense of childhood.
I cannot even begin to imagine what it must be like returning to the hospital and ward where my child received treatment, or visiting other similar wards across the country. I have a huge level of respect for Sally for being able to do this.
These toys and clothes don’t appear by magic and they are the result of a great deal of hard work, approaching companies, celebrities and organisations in order to spread the word about Blue Skye Thinking.
SHOCKING TRUTH – There is NO formal data collection, monitoring and sharing of side effects for Standard Treatment Guidelines (such as the Milan Protocol) used for many children suffering with cancer. How can we LEARN if we don’t SHARE??
Family Blog – Blue Skye Thinking 7th March 2015
After talking to Sally, it’s really hit home that whilst yes, I am doing this to support Blue Skye Thinking and Sally, Andrew and Jesse and most importantly for Skye’s memory, I am also doing this for every single parent who has lost a child or has been told that they face losing their child as a result of childhood brain tumours. It’s for the parents facing their “new lives” without their child, it’s for the parents facing this journey of unknowns, it’s for the parents who have to explain to siblings that their brother or sister won’t get better. And it’s for the children who are fighting; for the children who need to be given a better chance of survival.
On Saturday 2nd May 2015 I completed my first challenge: abseiling down the Spinnaker Tower in Portsmouth.This was done on a bad knee injury and at no point did I consider how scared I would be swinging from a rope above Portsmouth..how I didn’t vomit I do not know.. As I said before, this was the first of a number of challenges I will be doing to fundraise for Blue Skye Thinking. The charity relies on donates and all money goes directly into research and treatments.
Due to illness and life stuff, I wasn’t able to carry out any other big challenges last year, however it’s now 2016 and I’m back. In a couple of weeks, I will be doing a joint fundraising event for Blue Skye Thinking and the Little Princess Trust and will be cutting my long locks much shorter. I will be raising money for BST and donating my hair to children who have lost their hair due to illness. Although getting my hair cut will be the least demanding challenge in my quest to raise £1000, I think psychologically it could need the most psyching up before hand. People close to me will know that I suffer from an eating disorder and body dismorphia and my hair is hugely important in my self confidence and esteem.
If you would like to donate, you can do so through Just Giving here or via Just Giving text, by texting LCBS48 £2 to 70070 to donate £2 (or enter whatever amount you wish). Every little helps and it will make a huge difference to the children diagnosed with brain tumours, as well as their families. Give a child a better chance of survival and continuing with their childhood. No amount is too small and it will make a real difference.